Heir Apparent

Battle Royal

Yes, I sometimes think in dark places.  I mean with metastatic melanoma, scars on my face from excisions, radiation treatment, and now a clinical trial, it’s not all that hard to find your mind go murky. At times, I feel like the next in my family, riddled with cancer, to wear the crown of cancer.

bird crane balearica regulorum royalty free

A person of our American royalty, former First Lady Eleanor Roosevelt is the central figure to a fictional account of her life in the book, White Houses by Amy Bloom. I enjoyed reading this novel that imagines the life between Eleanor and Lorena Hickok though it blurred the lines for me between historical information and an invented story. I devoured the book knowing I prefer more factual portrayals of people of ER’s stature.

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One of my favorite quotes by Eleanor Roosevelt hangs on my fridge!

 

Royal Treatment

Why mention White Houses? Author Amy Bloom uses a description about saplings in the woods (forgive me for not having the wording handy). In comparing shaded saplings to people, the author relates the smaller trees will be stunted by those towering trees that relish the canopy, thriving on the light well fought for by competing trees.

An analogy that works eloquently for those of us with skin cancer. Do we now hide in the recesses of  dingy corners of our world? Should we resign ourselves to a tenebrous existence far from the beckoning sun? Are we relegated to be lowly saplings who never benefit from the light?

Those that reach for the light grow!

Hell, no! Shadowy thoughts like that are the last thing we need. Acknowledge those cancer moments, grab your cancer crown (a large brimmed hat for me!) and sun screen, and seek the light, seek the positive.

Use sun-safe habits and your #sunsmarts. Enjoy the things you love and keep solar mindfulness with you at all times. Take your vitamin D and find the courage to get out there! Light is metaphorical for illuminating the positive and also offers physical improvement when sensibly enjoyed. That doesn’t mean ignore your doctors!

Some People are…Well…A Royal Pain

Where did the light come for this blog? I just read a blog post where the writer stated we need direct sun and that sun screen is not good for us. Really? I know that the sun is essential to life; I get that in a big way, but really, no sun safety? Yes, that statement angers me because I GO TO THE DOCTORS, I GO THROUGH THE PAIN, I FIGHT FOR MY LIFE. I commented on that blog! The response explained that melanoma is a blessing. Really? No words here.

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Stand Tall!

Reach for the light every day. Open your mind, open your heart, and you will leave the gloomy thoughts and the darkness in the undergrowth. Don’t read trivial stuff. Do what you love and grow strong; become the tall tree.  #melanomatheskin #cancer #melanoma #readingmatters #becomethetalltree

We can-cer vive!

Janis

 

Red, White, and You

Red, White, and You!

The 4 B’s of Independence Day

Happy 4th of July! Celebrate your independence in breaking from the stereotype that a dark tan is healthy. Independence Day in the United States is a time for boating, barbecues, and beaches. Oh, yeah…it’s also a time for some of the best burns, sunburns that is.

Laughingly, in the past, I couldn’t understand why people went to the beach or barbecue if they wore all those clothes or hid under an umbrella. My sister and I called beach umbrellas “the impalers”, because of their potential to let loose and hurt someone (as well as those pale people sitting under them).

Open Minds, Open Umbrellas

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Now, I am one of those people. I even have a small umbrella that clips to my chair-perfect for those situations where there is no shade and I find myself caught in the sun. I keep it in the car. Sound extreme? Try having your head snapped down to a radiation table day after day to (hopefully) rid yourself of metastatic melanoma (to name just one treatment phase for melanoma cancer patients)…now that’s extreme. Suddenly, the idea of sun safety makes sense.

It’s great to be white, brown, or whatever your natural skin color is. In Victorian times, women wanted to whiten their skin as described on Women of the World’s site. The idea was that white skin indicated you were an aristocrat and not out working in the fields. While the extreme and unhealthy measures such as bathing in arsenic springs were prevalent, we know better now about whitening the skin. Today, we also know about reddening the skin and skin damage.

Burn Baby, Burn

Contemporary culture has given us more leisure. A less agrarian society (unfortunately), people enjoy free time. For generations, we’ve viewed darkening our skin as a sign of beauty. Media continues to depict tanned bodies as the beautiful, healthy look we crave. This needs to change because I’m just not craving my next immunotherapy. Are you?

#naturalskinrocks

#Naturalskinrocks, whatever your color-love you, love hue! Dana Farber Cancer Institute dedicates the 6th floor to melanoma and other skin cancers.  That’s where I go for the clinical trial that I participate in on a regular basis.  We’re all there together, terrified and seeking resolution, seeking life; every person with every skin color imaginable, seeking hope and answers.

Scan Versus Tan

Skin cancer and in particular, melanoma knows no color barrier, no discrimination here.  Think your genes are meant for sunbathing, and that you are not going to get cancer because your genetic makeup is to have dark skin? We all think we are safe until we find ourselves on the 6th floor of Dana Farber. Now I scan (MRI, CAT, etc) instead of tan. I’m not wanting to scare you, I’m wanting you to help change our culture away from the solar genuflection that kills. Avoid the red, avoid the burn.

Happy 4th of July

Celebrate Independence! Celebrate the red, white, and blue! Celebrate creating a culture of #sunsmarts.  #melanomatheskin #melanoma #skincancer #naturalskinrocks #avoidtheburn #Happyfourthofjuly

We Can-cer vive!

Janis